Yellow and farce in two stages of the company Imola ' Theatre at the farm, "Saturday night at 21 in the municipal theater of Conselice for a benefit show for children and children suffering from a rare disease, a variant of Rett syndrome such as those of West and Lennox Gastaut will cancel neurological development marked by a fatal destiny from birth. The fault is nell'anomalia a gene, CDKL5, partly for lack of a protein. The result is a profound mental retardation, seizures, just 45 days after birth, and forms of autism with a number of serious events. Then spread the knowledge of this syndrome - which often confuse its symptoms with other serious diseases - means helping those who can not have it, but most allow research to develop drugs that can save the lives of so many little creatures. Arrange for the first time in the territory of Lower Romagna, the charity evening is the CDKL5 Association, founded with the goal of connecting parents of children with this syndrome and to share scientific results with the research groups operating within Italian university and abroad. The staff association will be present in Conselice before and after the play "For love or crime ', to illustrate more precisely the objectives of this NGO, founded last year in Castel San Pietro Terme and strongly committed to raise resources for scientific research. Already this year the association will be available for CDKL5 even a 5 per thousand, as well as other donations. After an initial meeting with the Telethon this year initiated the first national scientific conference on the CDKL5, where he was presented a project for the care of children with CDKL5 by Ms. Ciani, University of Bologna. Inside, collect subscriptions from Italy. For more information: Emanuela Defranceschi - CDKL5 voluntary association - tel.3207272003 - email: emydefranceschi@hotmail.com
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